Tuesday, June 12, 2007

THERE HAS TO BE A SILVER LINING, RIGHT?

I went to the doctor and he told me I had a lymph node infection. I have ms but the first thing I thought was cancer, thank God it wasn't! so they give me pain pills antibiotics and send me home. I was in the er all day saturday because of the horrible pain in my back and stomach, so yeah another fun ct scan. This time i had a large cluster of lymph nodes swollen in my lower abdomen and they found a "nodule" in my liver. Maybe it could be a cyst, he said not to worry about it. I just wonder if its all the meds I take. To top it all off my husband gets mad at me and acts like a jerk just because I went to the hospital. If I have an exacerbation bad enough to put me in the hospital like the one a few months ago-he gets angry. I can't control it. He should be understanding since he has ulcerative colitis, but he's not. If I stay home he will take good care of me but sometimes I have to go to the er. It doesn't help that our hospital is very slow, I was there for 8 hours! Plus you say you have ms and this place has no clue what to do. I even had a nurse put gloves on to touch my arm because she thought it might be contagious!!! Ignorance is bliss I guess. Anyway, I have to hold the family together because if I get stressed I start to have seizures and then I get the guilt trips of how I make everyone (i.e. my mom) feel uncomfortable. Like she has to walk on "egg shells". She has a severe hypocondriac problem so I get put in the hospital-the nest day or so she is in there. She swore she had ms for 2 years after I got diagnosed, but the mri said different. She still gets all my symptoms. Has all my problems, and expects me to listen and feel sorry for her, put my needs and fatigue aside and wait on her hand and foot when I'm DRAGGING MY FOOT!!!!I just want to scream! I feel like I have so much bottled up inside and no one to talk to. I never let myself cry. If I hurt-I laugh, if I'm weak-I push harder and i grit my teeth and bear it. But now I'm tired. I want to rest and I mean on the inside. My mind never shuts down. I haven't slept in 2 days and I shake for hours and I HURT! as you can imagine I laugh alot. lol I just want someone to listen to me and think about what I'm going through too. I just can't seem to make my family fully understand my ms. HELP!!!